The Batten Batten ball video 2017

In what was a hugely uplifting night with the most amazing musical talent, Battle Batten raised (early indications)! £25,250!!!!! OMG folks – never did we imagine! For those who couldn’t join us, here’s the pre-ball video that certainly got everyone in the mood!! Thanks xxxx


A celebration ball!

We finally did it!

After months – nay years – of being asked to do another ball after the success in November 2014, we’re doing it all again in November 2017!

Organising a ball isn’t the easiest of tasks – but when we think about the atmosphere at the last, and how much people have helped us both fundraise and emotionally support us in the last few years, we thought hell yeah! Lets celebrate.

So on the 18th November at Goosedale in Papplewick, we are hosting another ball. We have just weeks to pull this together but know we will get 400 people there with the interest we’ve already had. If you want to join us, the flyer is here and you can book here

We’re always looking for sponsors and prizes so please feel free to get in touch – there’s no pressure, no bargaining, we’re just grateful for whatever you can do. Its musical. Its celebratory. Its fun. And it’s just before Christmas so if you’re not booked up with your Xmas do yet – always a good option! It £450 for a table of 10.

Look forward to seeing you there.

The ball last time! (Thanks to the wonderful Mark Walker)


Freddie and Louie celebrate 10th birthday with local musician

Freddie and Louie were surrounded by friends and family in their home as they celebrated their tenth birthday on Saturday 19th September 2015.

Parents Sarah and Andrew were overwhelmed by the thoughtful presents and gifts from friends and family as Connor Spray, local musician arrived for a personal performance with Freddie and Louie

It was a delight to watch as Freddie and Louie rocked and banged to the music from Wonderwall to original tracks written by Connor himself.

“Music has been the absolute stimulator for both Freddie and Louie since they lost their sight seven years ago. We do everything to introduce Freddie and Louie to music throughout their life so to have a personal rendition in our own living room on their tenth birthday means everything to us,” said mum Sarah.


MP Mark Spencer and Andrew ride 56 miles

MP Mark Spencer and fundraising dad to cycle 56 miles pushing local Battle Batten campaign towards £100,000 fundraising mark.

Mark Spencer MP will ride the borders of his constituency on Sunday 12th September to support ‘Battle Batten’ as we nudge closer to the £100,000 fundraising mark.

In the latest fundraising effort, MP and pal of the family, Mr Spencer has volunteered his Sunday morning to ride alongside dad Andrew, in a bid to raise cash and awareness of the rare condition, for which there is no cure.mark spencer mp

Mr Spencer said: “I’ve known Andrew for a while and what his family have done in terms of fundraising, for the sake of their boys and to give them the best life possible but also for other children across the UK with this condition, is really inspiring. Their dedication is incredible.

“That’s why when Andrew’s asked me if there was any way I could help I wanted to show my support, and I’ve put this ride together.

“I hope that it will encourage people to donate, and to look at their website to find out more about what they can do to help.”

Sunday’s ride will take Andrew and Mr Spencer, along with other friends and volunteers, on a route from the MP’s home in Lambley all the way around the borders of the constituency, taking in Bestwood Village, Hucknall, Ravenshead, Blidworth, Rainworth, Clipstone and Edwinstowe on the route up to Thoresby Hall, before they head back home through Ollerton, Eakring, Kirklington, Edingley and Woodborough.

Andrew’s said: “We are really grateful to Mark and his team for organising this event which is all the more poignant as it coincides with the week that Freddie and Louie reach their tenth birthday.”

You can support the charity by emailing Mark on or donating on

Ever fancied running your own pub?

Last week, we were fortunate enough to host our ‘Run a Pub’ fundraiser at The Somers Town Coffee House in Euston.  The winning bid for the prize, auctioned on ebay, came from Lizzie Wills, who took up her post as Guv’nor for the day at the Yummy Pub Co site on 5th March.

For those of you who may have missed the feature on London Live, here it is:

JustGiving announcement

Andrew and Sarah were thrilled to have received an email this week from JustGiving fundraising site, “We are in the top 1% of their fundraisers world wide this year!!!!!!!!!! What a fantastic achievement for everyone involved, thank you again so much xxxxxxxx”




It’s time to book your seats for the much-anticipated Battle Batten ‘Black, White & Blue’ Ball! We invite you to put on your shiny shoes, glamorous dresses and suits for an evening of fabulous food, drink and dancing in the stunning setting of Goosedale Conference Centre on Saturday 8th November. There will also be live music, disco, raffle, silent auction and casino (for those of you who want to try out your Blackjack skills!).

And what’s even better, by attending the ball you will be helping us raise money for vital research and therapies, while celebrating an incredible year of fundraising. Contact us to book your place today!

Booking Form Battle Batten Ball

Battle Batten Ball 8th November



Freddie received a special headmasters award for outstanding emotional & social achievement . He has come so far since the 3 years he never smiled while losing his vision bit by bit.